What is Ehlers-Danlos Syndrome?
Individuals with Ehlers-Danlos Syndrome (EDS) have a genetic defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in patients with EDS are the result of faulty or reduced amounts of collagen. Collagen is a protein, which acts as a “glue” in the body, adding strength and elasticity to connective tissue.

Share with us the treatments that had helped you resolve your symptoms.

Having a rough time? We're here to listen and support.

Join the Ehlers-Danlos Syndrome (EDS) discussion forum for patients, friends and families affected with EDS.
We love to hear you stories and information about treatments, symptoms and side effects.

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.