Hi, I’m Vanessa and new to the community.
I don’t have a diagnosis yet, but EDS and POTS run in my family and all my symptoms are starting to make sense now that EDS has been suggested.
I started getting sick when I was around 16yrs. A lot of stomach pain, vomiting and what I now realize was probably POTS symptoms.
I used to wake up with what I thought were panic attacks.. finding myself running to the bathroom to be sick before I was conscious of where I was.
Digestion has always been an issue and has caused me to be on liquids for months at a time when I was younger.
Now, 30 years later, the digestive issues still stand. But I’ve been dislocating joints and tearing tendons for the past 5yrs and doctor suggested EDS.
Maybe if I could have seen through the brain fog I would have put 2 and 2 together..(my niece being diagnosed years ago).
Anyways, here I am. Don’t have much support in the real world, looking for anyone positive to talk to.