I was wondering is it possible to be unnourished and have okay blood work? I eat about 1000 calories a day and feel horrible but my blood work is okay.
I probably have CFS and this on top of it is… hard to manage. I was thinking of bringing up my bad nutrition situation with a neurologist.
I am thinking of discussing a feeding tube (also with the neurologist) at this point. Since I’m struggling to go to work etc and I’m desperate since doctors have have nothing to offer me 
I am still drinking nutrition drinks but it’s getting really hard to drink them, and they do help a bit but not enough…
I am waiting to see a gastroenterologist but it is still a while away
I would appreciate any advice!
Hey A,
I would strongly suggest a dietitian and a gastroenterologist at a bare minimum. It may also be a good idea to speak to a social worker within the hospital/medical realm who maybe able to advocate on your behalf. This could help push your case along the line a little with the specialists. Sometimes having someone within the hospital system, who knows the systems can make navigating it all a little easier.
I’m in Australia and here we have a ‘Team management’ approach taken for some people with complex needs. ‘Complex needs’ is considered 3 or more conditions. EDS, CFS and weight management would make you qualify. The good thing about this approach is that you have specialists from each ‘condition’ all meet with you and look at a plan for the whole ‘you’, rather than the ‘EDS you’ by one dr, then the ‘CFS you’ by another dr and weight management by yet another dr (none of whom correspond with each other). The outcome with a Team approach can be more holistic.
Hope it helps
Merl from the Modsupport Team
1 Like